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PD Registry
On behalf of the entire Parkinson’s
community, the Parkinson’s Action Network (PAN) strongly
supports the National MS and Parkinson’s Disease
Registries Act, H.R. 1362/S. 1273. This legislation will
establish National Multiple Sclerosis (MS) and
Parkinson’s Disease registries to determine the
incidence and prevalence of the diseases by laying a
foundation for better evaluating and understanding these
diseases. PAN worked closely with the National MS
Society to facilitate introduction of legislation in
both Chambers of Congress to address the lack of
accurate incidence information. Both organizations will
be advocating this legislation in the hopes to have it
signed into law in 2010.
For more information go to
PD Registry
and Click on “Take Action” to e-mail your Representative
and Senators by using PAN’s CapWiz system and asking
them to co-sponsor this bill.
Both NYS Senators and Representative
Chris Lee are already co-sponsors. Use the CapWiz system
to thank them – it will send a thank you instead of a
request if they have already co-sponsored the bill.
PD RESEARCH FUNDING
(NETPR)
Ask your Representative and Senators
to Support Parkinson's Research at the Department of
Defense. The Department of Defense Program is the Only
Parkinson's-Specific Research Program Funded by the
Federal Government.
We are once again faced with the
challenge of securing funds for the Department of
Defense Neurotoxin Exposure Treatment Parkinson's
Research (NETPR) program. The Parkinson's community
needs your help to secure funding in the Fiscal Year
2011 Defense Appropriations bill for the NETPR program -
the only Parkinson's-specific grant program in the
Federal government.
The NETPR program is a national,
peer-reviewed grant program that studies how to protect
members of our military from toxic substances, head
injuries, and other known contributors to Parkinson's
disease. In addition to helping protect our soldiers,
research breakthroughs in prevention, detection, and
treatment are immediately applied to the entire
Parkinson's disease community.
Each year, Parkinson's advocates and
members of the Bicameral Congressional Caucus on
Parkinson's Disease lead the effort to fund the NETPR
program in the Defense Appropriations bill. Funding for
the NETPR program is not automatic: each year we secure
support for the program by asking Members of Congress to
sign a "Dear Colleague" letter that requests funding for
the NETPR program.
Thanks to the outstanding advocacy
efforts of the Parkinson's community, we secured $25
million for the NETPR program in Fiscal Year 2010 - a
year of tight budgets and many program cuts. Help our
community request $55 million for the Fiscal Year 2011
NETPR program by e-mailing your Representative and
Senators NOW and asking them to sign the NETPR program
Dear Colleague funding letter.
To learn more about
NETPR go to:
NETPR and Click on “ Take Action “ to ask your Senators
and Representative and sign the “Dear Colleague” letter
for NETPR funding. (Also through CapWiz.) For any
questions on these issues, e-mail Linda Herman,
Ljherman1@juno.com
You can now view a webcast of PAN’s
2010 Forum from your home computer. For details go to:
PAN Forum
Last updated 3/12/10 |
