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The following is a list of
support organizations available that can help further your education on
Parkinson's disease and provide you with more ideas to help with many of the
problems associated with Parkinson's disease.
National
Parkinson's Foundation
1501 Northwest 9th
Street
Miami, FL
33136-1407
Website:
www.parkinson.org
Ph: (800) 327-4545
Email:
mailbox@parkinson.org
Parkinson's
Disease Foundation
1359 Broadway,
Suite 1509
New York, NY 10018
Phone: (800)
457-6676
(212) 923-4778
www.pdf.org
Young Onset Parkinson's Association - YOPA
PO Box 50936
Albuquerque, NM 87181-0936
505-293-5612
Website: www.yopa.org
American Parkinson
Disease Association, Inc.
Parkinson Plaza
135 Parkinson
Avenue
Staten Island, New
York 10305-1425
Website:
www.apdaparkinson.org
Ph: (800) 223-2732
Email:
apda@apdaparkinson.org
The Michael J. Fox
Foundation for Parkinson's Research
20 Exchange Place,
Suite 3200
New York, NY 10005
Website:
www.michaeljfox.org
Ph: (800) 708-7644
The Parkinson
Alliance
Post Office Box
308
Kingston, New
Jersey 08528-0308
Website:
www.parkinsonalliance.net
Ph: (800) 579-8440
Email:
admin@parkinsonalliance.net
Parkinson's Wellness Group of Western New York,
Inc.
222 Seabert Ave
Depew, NY 14043
Contact: Tom O’Donnell
e-mail: Coach71395@aol.com
Phone: 716-684-0650
website: www.parkinsonswny.org
The Parkinson’s Wellness Group of Western New
York
Niagara Falls Branch
Contact Jim Mudd at 716-754-4052
All meetings are the first Sunday of
each month. 2:00 P.M. to 3:30 P.M. at the Niagara Falls Memorial Medical Center,
621 Tenth St., Niagara Falls. The Hooker
Room.
Parkinson's Support Group of Upstate NY, Inc.
PO Box 23204
Rochester, NY 14692-3204
Contact: Harvey Berson
Voice mail: (585) 234-5355
website: www.psguny.org
Parkinson Support Group of Syracuse New York,
Inc.
4224 Trotwood Lane
Clay, NY 13041-8755
Contact: Richard Olson
e-mail: Syracuse@chapters.parkinson.org
Phone: 315-652-6857
website:
Muhammad Ali Parkinson Disease Registry
The Muhammad Ali Parkinson Disease Registry is developing a national
database for PWP, that will help researchers learn more about PD and its
treatment, help track the cost of the illness over time, and help identify
services that can improve the quality of life for PWP.
To enroll
in the Parkinson’s Disease Registry, go to:
http://www.maprc.com/home/info/registry.aspx
Or for
more information contact:
info@maprc.com or call 877-287-7122
Parkinson
Primer
http://www.parkinson.org/site/pp.asp?c=9dJFJLPwB&b=71354
Treatment
Options
http://www.parkinson.org/site/pp.asp?c=9dJFJLPwB&b=71355
Living
with Parkinson’s
http://www.parkinson.org/site/pp.asp?c=9dJFJLPwB&b=71356
Maintaining Optimal Wellness
http://www.parkinson.org/site/pp.asp?c=9dJFJLPwB&b=71357
NPF Free
Publications online
http://www.parkinson.org/site/pp.asp?c=9dJFJLPwB&b=71407
NPF
Parkinson Report Online (2001 – present)
http://www.parkinson.org/site/pp.asp?c=9dJFJLPwB&b=106856
Readings
of Interest to the Parkinson’s Community
http://www.parkinson.org/site/pp.asp?c=9dJFJLPwB&b=71410
Other
Links
NINDS
Parkinson’s Disease Information Page
http://www.ninds.nih.gov/disorders/parkinsons_disease/parkinsons_disease.htm
Nutrition
You Can Live With – Nutrition for PWP
http://www.nutritionucanlivewith.com/
WE Move –
Parkinson’s Disease – Information for PWP and Caregivers
http://wemove.org/par/
Medline
Plus – Health Information from the National Library of Medicine
http://medlineplus.gov/
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